Autophony Syndrome – Not Ghost Breathing Beside You

Patulous Eustachian tube, also known as patent Eustachian tube, is the name of a physical disorder where theEustachian tube, which is normally closed, instead stays intermittently open. When this occurs, the patient experiencesautophony, the hearing of self-generated sounds. These sounds, such as one’s own breathing, voice, and heartbeat, vibrate directly onto the ear drum and can create a “bucket on the head” effect.

Symptoms

With patulous Eustachian tube, variations in upper airway pressure associated with respiration are transmitted to the middle ear through the Eustachian tube. This causes an unpleasant fullness feeling in the middle ear and alters the auditory perception. Complaints seem to include muffled hearing and autophony. In addition, patulous Eustachian tube generally feels dry with no clogged feeling or sinus pressure.Some patients with this condition are disturbed by the perceived volume of their voice, causing them to speak very quietly. Their own voice may also sound lower to other people because the trachea has more volume when the Eustachian tube is open. The patient may also sound as if they have congestion when speaking. Some sufferers may have difficulty in normal activities. They may also experience increased breathing rate, such as that brought on by physical activity. The increased activity not only increases the rate and force of pressure changes in the airway, which is therefore transmitted more forcefully into the middle ear but also drives increased blood flow to peripheral muscles, compounding the problem by further depleting the Eustachian tube of extracellular fluid and increasing patency. The combination can lead to severe exacerbation of the symptoms. The urge to clear the ear is often mentioned.

Causes

The patulous Eustachian tube is a physical disorder. The exact causes may vary depending on the person.  Weight loss is a commonly cited cause of the disorder due to the nature of the Eustachian tube itself. Fatty tissues hold the tube closed most of the time in healthy individuals. When circumstances cause overall body fat to diminish, the tissue surrounding the Eustachian tube shrinks and this function is disrupted.[1]

Activities and substances which dehydrate the body have the same effect and are also possible causes of patulous Eustachian tube. Examples are stimulants (including caffeine) and exercise. Exercise may have a more short-term effect than caffeine or weight loss in this regard.

Pregnancy can also be a cause of patulous Eustachian tube due to the effects of pregnancy hormones on surface tension and mucous in the respiratory system.[2]

Diagnosis

The patulous Eustachian tube is frequently misdiagnosed as standard congestion due to the similarity in symptoms and rarity of the disorder.  Audiologists are more likely to recognize the disorder, usually with tympanometry or nasally delivered masking noise during a hearing assessment, which is highly sensitive to this condition.[3]Upon examination of a suspected case of a patulous Eustachian tube, a doctor can directly view the tympanic membrane with a light and observe that it vibrates with every breath taken by the patient. A  tympanogram may also help with the diagnosis. The patulous Eustachian tube is likely if brisk inspiration causes a significant pressure shift.

When misdiagnosis occurs, a  decongestant medication is sometimes prescribed. This type of medication aggravates the condition, as the Eustachian tube relies on sticky fluids to keep closed and the drying effect of a decongestant would make it even more likely to remain open and cause symptoms. The misdiagnosed patient may also have tubes surgically inserted into the eardrum, which increases the risk of ear infection and will not alleviate patulous Eustachian tube. If these treatments are tried and failed, and the doctor is not aware of the actual condition, the symptoms may even be classified as psychological.

Incidentally, patients who instead suffer from the even rarer condition of superior canal dehiscence are at risk for misdiagnosis of the patulous Eustachian tube due to the similar autophony in both conditions.

Patulous Eustachian Tube (PET) or tube to open remains an ET dysfunction category, difficult to diagnose and to treat. Recent studies suggest that the pathophysiology and etiology of PET are more related to a previous history of otitis media, rather than from weight loss, which was widely recognized as the major causal factor. Simultaneous weight gain can even be observed in some cases. The average age is 30 years, with a female prevalence. It’s rare to find patients of less than 15 years of age, which seems to confirm the opinion that PET is an acquired condition. Chronic upper respiratory inflammatory diseases are almost always associated with PET; half of these patients report the previous history of nasal or sinus surgery. Radical posterior/inferior turbinectomies seem to be proportionally connected to PET severity. History of recurrent otitis media with effusion, with tympanostomy and adenoidectomy during childhood is also frequent. Laryngopharyngeal reflux (LPR) is identified in a great proportion of patients. Last epidemiological data indicates that PET results from obstructive ET dysfunction evolving over a long period of time.

Since the surgical management of these two pathologies is at diametrically opposed extremes, it is critical to obtain the correct diagnosis before undertaking any treatment. Visualization of a permanently open tubal valve by endoscopic examination allows settling this question, but its absence does not exclude PET diagnosis. Sonotubometry and recently developed turbo manometry may help in some specific cases. Unfortunately, some PET cases remain difficult to diagnose.

Autophony (self-healing from inside, strongly amplified) seems to be a common symptom to all PET patients. Unfortunately, its presence also reveals an advanced degree of patency, requiring in most cases surgical management. Other symptoms of PET, such as tinnitus, fullness and ear blockage, can also be reported by patients suffering from obstructive ET dysfunction. This differential diagnosis problem, unfortunately, leads to some surgeries proposed by well-intentioned but inexperienced ENT surgeons. Some of these surgeries may make things worse.

At the beginning, patients hear their own voice “from inside”.[this quote needs a citation] They describe it as being amplified and unpleasant. Patients frequently avoid speaking and retire in a rising solitude. Lying head down may help since it increases venous blood pressure and congestion of the mucosa.

With time patients may develop respiratory autophonia. At this stage, they hear “from inside”.[this quote needs a citation] They describe hearing their own respiration and sometimes other bodily functions, like a heartbeat. Some patients may find this unbearable and depression is common. Psychological supervision may be indicated.

Treatment

Historically, to temporarily alleviate symptoms, patients have tried positional maneuvers, such as tilting their head to one side or upside down, lie down on their backs, or sit in a chair with their head between their knees. Similarly, a routine of lying down four times per day with legs elevated to around 20 inches for at least two weeks has been attempted as well. Depending on the underlying cause of the disorder, the individual may need to remove caffeine from their diet, reduce exercise, or gain weight. It may be the case that the symptoms are induced by anxiety; anxiolytic drugs or supplements (e.g., GABA) combined with the removal of caffeine from the diet could offer a simple strategy to determine if anxiety is the root cause.

Estrogen (Premarin) nasal drops or saturated potassium iodide have been used to induce edema of the eustachian tube opening. Nasal medications containing diluted hydrochloric acid, chlorobutanol, and benzyl alcohol have been reported to be effective in some patients, with few side effects.  Food and Drug Administration approval is still pending, however.[4]

In extreme cases, surgical intervention may attempt to restore the Eustachian tube tissues with fat, gel foam, or cartilage or scar it closed with cautery. These methods are not always successful.

References

  1. Jump up^ Patulous Eustachian Tube Overview at eMedicine
  2. Jump up^ Hillman, Edawrd J. (1995). Otolaryngologic Manifestations Of Pregnancy. BCM
  3. Jump up^ Hori, Y., Kawase, T., Hasegawa, J., Sato, T., Yoshida, N., et al. (2006). Audiometry with nasally presented masking noise: a Novel diagnostic method for the patulous eustachian tube.Otol Neurotol, 27, 596-599.
  4. Jump up^ Patel, K and Levine S (July 31, 2010). “Medicine – Patulous Eustachian Tube”.

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Includes hyperacusis, autophony (own voice is loud), loud internal sounds from walking, heartbeat, even hair combing

Includes hyperacusis, autophony (own voice is loud), loud internal sounds from walking, heartbeat, even hair combing. Tullio – loud sounds trigger vertigo, jumpy eyes. P. McBride, Contributions to the Pathology of the Internal Ear, 157. I would further add that the greatest possible care and gentle- ness should be employed, so as not to lacerate the membrane tympani, nor even the skin of the meatus, if possible. At the moment of pressure the lad felt a sharp pain and heard quite a loud cracking in his left ear, but there was no loss of consciousness nor confusion of intellect. In this condition the patient applied for relief in July of last year; it was found that the vertigo was increased or brought on by pressure upon the nape of the neck and vertex of the head, which was sensitive to touch, and that the resonance of her own voice, external noises, and also the sound of her own steps in walking, increased the subjective noises in both ears.

Autophony is the unusual hearing of one’s own voice and even breathing sounds

Superior canal dehiscence (SCD) can affect both hearing and balance to different extents in different people. SCDS-related autophony differs greatly in quality and range from the more common form which results from an open or patulous Eustachian tube through which sufferers of this disorder hear the sound of their own voice and breathing. These sounds, such as one’s own breathing, voice, and heartbeat, vibrate directly onto the ear drum and can create a bucket on the head effect. Complaints seem to include muffled hearing and autophony. If these treatments are tried and failed, and the doctor is not aware of the actual condition, the symptoms may even be classified as psychological. It’s something really weird that happens to me on occasion while I’m exercising. When this occurs, the patient experiences autophony, the hearing of self-generated sounds. These sounds, such as one’s own breathing, voice, and heartbeat, vibrate directly onto the ear drum and can create a bucket on the head effect. It makes me completely pan, which elevates my heart rate even more!

Hi: I know that feeling of hearing your own breath–every single time you inhale it feels like the eardrum is moving in and out. I still have the fullness feeling and the autophony where my own voice sounds like it is screaming in my ear even when I speak softly. What it’s like to hear your own voice, amplified in your own head. The condition caused, among other things, autophony (according to Wikipedia, the unusually loud hearing of a person’s own voice, breathing or other self-generated sounds. How do you deal with autophony and dizziness when you sing? Autophony person’s own speech or other self-generated noises (e.g.

It’s still only my left ear and it’s very changeable – even during the day. The tinnitus itself I think I can live with but it’s the weird sensation of my own voice and sensitivity to noise that worries me – and the possibility of hyperacusis. My own voice loudness/distortion/echo effect varies also, often throughout the day. Your cortisol levels sound like they’re off the charts and that can increase T. My voice and breathing were also very magnified in that ear, he explains. Besides the peculiar symptom of hearing your own eye movements, Lee says his patients also report hearing other noises unusually loud through the affected ear or ears. People with PET often hear their own voices (autophony) or echoes, and of course, they also complain of annoying ear fullness. Some people are just born with unusually small Eustachian tubes and have recurrent trouble most of their lives. Sudden loud noises are capable of causing severe pressure in the ears, open Eustachian tubes help limit potential ear damage. PET occurs when the Eustachian tubes remain open most of the time, creating some annoying symptoms as hearing one’s own voice, breathing, or echoes.

Sound Of Breathing In-Ear

I can do that too and my wife thinks it’s weird. If she puts her ear up to mine she can hear it too. I don’t even know how long I’ve been able to do it, but I remember when I first noticed, and it was really annoying. When this occurs, the patient experiences autophony, the hearing of self-generated sounds. These sounds, such as one’s own breathing, voice, and heartbeat, vibrate directly onto the ear drum and can create a bucket on the head effect. Tinnitus is the perception of abnormal ear or head noises. Autophony is the unusual hearing of one’s own voice and even breathing sounds. He complained that his hearing had changed in a very odd way. If it were quiet enough, he could even hear his heart beating. One is autophony or the bothersome perception of internal noises such as the sound of one’s own voice, breathing, and chewing. Patients may present with an unusual sound and pressure-evoked vestibular symptoms, autophony, conductive hyperacusis, and hearing loss. It sounds very like the noise you get when you yawn, a roaring, windy, airy sound very low frequencies, or like the noise you hear on a plane of the air rushing past. Or can anyone tell me if my theory is even plausible? Sorry to hear about your own ear problems. I find that better than hearing my own voice and breathing so loud in my ear though. It got embarrassing once when someone pointed out to me that I am acting like a cocaine addict sniffing a lot and talking with a weird nasal voice! Yes my next option is to have an allergy test, but even so, my ears just pop and crackle non-stop all day and I do get that same sensation as u, I thought it was just me. It’s went the little tube that connects your sinuses- nose and ear- has problems. Through the years, I have just dealt with the annoyance of hearing my own voice and breathing, and the worst- hearing myself chew food. My husband suffered from sound and pressure evoked dizziness, vertigo, imbalance, tinnitus (sp??), hearing his voice, heartbeat, eye movements, conductive hearing loss & nausea for over 20 years.

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Tinnitus And Possible Hyperacusis

Nz – ISP in Auckland, 00 New Zealand) Date: 2007-01-04 03:17 I have had similar problems- with the loss of hearing and weird phasing effects (plus loss of balance). If you have an acute conductive hearing loss, you will hear your own voice amplified in the blocked ear. Autophony or tympano phony is the unusually loud hearing of a person’s own voice. Persons with superior canal dehiscence syndrome (SCDS) typically hear not only their own voice but also heartbeat, footsteps, chewing, intestinal sounds and possibly even the sound of their eye movements when reading. That explains why if you plug your nose and swallow it feels like your ears may pop. I wasn’t even going to try. Me too, I can pop my ears and then hear the inner sounds of my voice and breathing and I can do it almost as if I’m flexing a muscle or something. I might lose my rock hard abs, but will it fix my autophony issues? He gave me a very firm Chinese style massage (it hurt, a LOT, and was in very tender areas such as right under the ear) for a few minutes to relax the muscles and almost immediately my hearing came back and that breathing in my own ear sensation stopped. Projecting my voice became difficult because even speaking at a normal volume is the equivalent of shouting when the tubes are open. There was a cap on how much volume I could muster because as I took a deep breath to ready myself, the tubes would pop open. I have a weird facial tic where I am flexing my muscles oddly in order to keep the tube closed. It definitely helps close the tube and eliminate autophony most of the time; although, I still have a lot of noise and crackling in my ears.

The students should tap their own thighs, for that is a dull sound and a dull feel. When students take their own body as a case they are learning not from a pickled body part or cadaver, nor from written descriptions of symptoms and signs, but from their living, breathing body that creaks and pulses and moves. Rice, T. (2013) Hearing and the Hospital: Sound, Listening, Knowledge and Experience. For many of us, there are few things more painful than hearing a recording of our own voices. Autophony is the unusually loud hearing of a person’s own voice. Serous Otitis media; Open or Patulous Eustachian tube, allowing vocal and/or breathing sounds to be conducted into the middle ear. Persons with span superior canal dehiscence syndrome /span (SCDS) typically hear not only their own voice but also heartbeat, footsteps, chewing, intestinal sounds and possibly even the sound of their eye movements when reading. Thanks for your query, the wisdom tooth which is impacted can result in radiating pain to ear, temporal region, head, and neck region. Ok, I know this sounds stupid. and I don’t even think it is pregnancy related. but I don’t even know how to google this symptom, lol! so for the past couple of months. When this occurs, the patient experiences autophony, the hearing of self-generated sounds. These sounds, such as one’s own breathing, voice, and heartbeat, vibrate directly onto the ear drum and can create a bucket on the head effect. Autophony is the action of hearing your own self-generated sounds, such as hearing your own voice or hearing your own blood circulation. Instead of reducing ambient noise and amplifying one’s own voice, we wanted to create a machine which downplays the user’s voice. However, it was at this point that we realized that Audacity didn’t play well with JACK, and wasn’t even designed for real-time transformation of audio.

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Signs and Symptoms: Tinnitus was present and sounded like wind, accompanied by autophony and decreased hearing ability

Signs and Symptoms: Tinnitus was present and sounded like wind, accompanied by autophony and decreased hearing ability. The patient’s appetite and sleep were fair. I could hear my own voice like an echo, and it seemed so very loud. He said there was no sign of infection, and that the most likely explanation was damage to my cochlea. Hi everyone I started my problem with a blow on my right ear, and then my symptoms are very similar to the little followed Difference is that I have been diagnosed tinnitus since march this year wth some hearing loss on the same ear and mild hyperacusis. Recently symptoms have gotten worse to include a sudden feeling of blockage and hearing myself speak. Most doctors boo-hoo this, but it’s like Lyme–when treatment helps you, you go with it! Thank goodness! On the Internet are many references to tinnitus, most being metabolic mayhem always present in a disease, as is inflammation. Tinnitus can accompany Lyme hearing loss, Lyme sound sensitivity and Lyme stress (for instance, being sensitive to the noise of hearing more than one conversation at a time and having difficulty with Lyme multitasking to understand what’s being said–is stressful.

A bilateral vestibular loss will cause severe oscillopsia with minimal vertigo. central oculomotor signs. Tinnitus, hearing loss and aural fullness frequently accompany the peripheral disease. The following symptoms also point to a central cause, i.e. dysarthria, dysphagia, diplopia, hemiparesis, severe localized cephalgia, seizures or memory loss. Does a loud sound make you dizzy or make your world jiggle? Tinnitus, or Ringing In The Ears, could be quite irritating. If none of these can stop the wind audio in ear drums or seem like they won’t assist then you most likely have Ringing in the ears. Treatment for the a lot more common, modern hearing loss that could reduce signs and symptoms and results includes a four-part program of healthy and balanced lifestyle changes, including o A minimum of HALF AN HOUR of day-to-day workout, o Vitamin and mineral supplements, o A healthy diet of veggies, fruits, whole grains, fish as well as lean meat, as well as o Security from extreme noise exposure. The hearing loss is accompanied by high-pitched tinnitus. The signs, symptoms, diagnostic workup and treatment are basically the same.

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They range in sizes from 15cc to 20cc and provide 40ul to 200ul drops with each dispensation. Symptoms this poor patient with the patulous eustachian tube may exhibit include hearing one’s own breathing inside the ear as well as autophony (hearing yourself talk in the ear). Symptoms that a patient may exhibit that may suggest a brain tumor are subtle and include hearing loss or ringing in the ear on the same side the phone is used on. Current replacement talking devices sound like a robot using state-of-the-art electrolarynx. In those patients who present severe symptoms, surgical treatment is required. There have been numerous suggestions that the low-frequency acoustic components in wind turbine signals can cause symptoms associated with vestibular system disorders, namely vertigo, nausea, and nystagmus. Results and Conclusions Symptoms of superior semicircular canal dehiscence (SSCD) include autophony, inner ear conductive hearing loss, Hennebert sign, and sound-induced episodic vertigo and disequilibrium (Tullio phenomenon), among others. The symptoms of vertigo, autophony, and Tullio phenomenon have been well described as has the utility of surgical repair. I can hear my heartbeat in my offending ear like a muffled thump. (meaning you report pressure in your ears, a conductive HL is present, etc).

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Thank you for all of you who share your stories. Please remember that Anxiety attack and paranoia can let think you are dealing with demon, ghost, spirit as you can hear voices or feel entity beside you or feel someone call you. It is well known that people with bipolar personality do hear things and the spectrum of the bipolar personality can be so wide range it can affect every aspect of the person life. That’s doesn’t mean there are no entities causing this problem but it is extremely rare so you have to focus on your Anxiety level as this alone can and it will manifest itself as a negative entity we call it the poltergeist.

 

I know that feeling of hearing your own breath–every single time you inhale it feels like the eardrum is moving in and out. It is extremely aggravating to be aware of the movement constantly in your ear. I found some articles at the PubMed site that have all sorts of journal abstracts. The name for that specific feeling that sometimes accompanies PET is “respiratory noise”. It is probably called different things but it basically means that when you inhale you hear your breath sounds and can feel the movement. It said that in cases of PET where that is present that the use of a ventilation tube can sometimes help. I saw one posting where someone had grommets and I think those are a much larger ventilation tube than I had. I had the tiniest possible ventilation tube put in so as to cause as little damage as possible to the eardrum. It is one used frequently in children as a short-term management type- cone shaped. I felt immediately that some of the pressure escaped but it was a short-lived relief. I found that my hearing felt distorted with the tube in and I couldn’t really tell what direction sounds were coming from. The tube came out after about a month or so naturally and I never opted to do it again. Putting it in is a little uncomfortable but well worth it if you get relief. Every case is individual and the doctor said he had another PET patient that came in every 6 months because it helped her. I did read that it should only be done with people who have that feeling of hearing their every respiration and can feel the movement against their eardrum. One doctor suggested it and another didn’t and neither seemed to be aware of the medical article I had found. That respiration sensation went away on its own in the last year and thank goodness for any improvement. I still have the fullness feeling and the autophony where my own voice sounds like it is screaming in my ear even when I speak softly. I think the respiratory movement in my ear seemed to improve when I drank lots of water, not caffeine products

Read more: http://www.healthboards.com/boards/hearing-disorders/58098-sound-breathing-ear.html#ixzz4KwVpMkD8

Thank you very much 

Steve Ramsey- PhD  Public Health . – Calgary – Alberta  

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